so i discovered that i have some chromosonal abnormalities that will impact the treatment and prognosis of my disease. i just joined two exclusive clubs i never wanted to be a member of- deletion 13 and deletion 17 support groups and 1q gains.
this really impacts my approach to treatment and my approach to life choices right now.
hubby is determined to get his business off the ground and while i’m trying to be a supportive wife, staring a 2 year overall survival rate in the eye is making me incredibly selfish. especially since i am going to have to be super creative and motivated to find the solutions that will ensure my quality of life and opportunities to participate in trials with better outcomes. we will see how it all works out, since my biggest priority is my daughter’s security and well-being. there will be many sacrifices ahead.